Tel: +44 (0) 1524 592127 Fax: +44 (0) 1524 592401 E-mail: dhr@lancaster.ac.uk
> Home
SEARCH using keywords/tags or full text search.
Psychological outcomes in people with low grade brain tumours: The role of illness perceptions.
Researcher: Melanie Booth, Trainee Clinical Psychologist
Research supervised by Dr Jacki Bambrough, Clinical Neuropsychologist, and Dr Jane Simpson, Head of Research, Lancaster University.
You are being invited to take part in a research study. Before you decide, it is important for you to understand why the research is being done and what it will involve for you.
- Please take the time to read this information carefully and discuss it with other people if you want to. Take time to decide whether or not you would like to take part.
- Please contact the researcher if you would like more information or to ask questions. Contact details are given at the end of this information sheet.
Thank you for reading this.
What is the purpose of the research?
Many people can experience changes in their psychological well being after being diagnosed with a low grade brain tumour, for example, feeling low or worrying more. Research has shown that people's beliefs about the illness and conditions that they experience can affect their mood and quality of life. This study aims to find out:
- What thoughts, ideas and beliefs do people who have been diagnosed with a low grade brain tumour have about low grade tumour?
- Can these thoughts, ideas and beliefs be reliably measured with a questionnaire adapted for the study?
- Do these thoughts, ideas and beliefs about low grade brain tumour help to explain people's psychological well being?
Why have I been chosen?
You are invited to take part in the study if you have been diagnosed with a low-grade brain tumour.
Brain Tumour UK and the Astro Fund Charity are helping me to contact people who are suitable to take part in the study. We hope that around 100 people will take part in total. Like you, they will all have been diagnosed with a low grade brain tumour.
Do I have to take part?
No, it is up to you to decide whether or not you wish to take part. If you wish to take part, you will be free to withdraw from the study at anytime and will not have to give a reason. A decision to withdraw from the study or deciding not to take part in the study will not affect any current or future treatment you receive in any way. If you do wish to withdraw from the study, you can email or telephone Melanie Booth and request to be withdrawn from the study. She will then remove your questionnaire data from the study.
What will happen if I decide to take part?
If you decide to take part, you will be required to complete a series of questionnaires that ask about your day to day abilities, your thoughts and feelings, your well-being, and your beliefs about low grade brain tumour. Everyone will complete these questionnaires at their own pace, but it may take between 45 minutes and 1 hour to complete. You can either decide to complete these online or the researcher, Melanie, can post these out to you.
In addition, you may be asked to complete one of the questionnaires again, approximately one month after completing the first questionnaires. This questionnaire takes about 15 minutes to complete.
What else do I need to think about before deciding to take part?
Some people can experience changes in their reading, writing, language or thinking skills after being diagnosed and treated for a low grade brain tumour. So, it is important that you make the right decision for you about taking part in the research study. Please only take part in the research if you feel you will be able to complete the questionnaires.
Also, this particular research study is looking at the thoughts, ideas and beliefs of people diagnosed with a low grade brain tumour. There are many different types of tumour, but at the moment, we are only asking for people to take part if they have been diagnosed with a low grade brain tumour. Low grade glioma brain tumour is the most common low grade brain tumour diagnosis. Please be certain about your diagnosis before agreeing to take part in the research.
Will my taking part in this study be kept confidential?
All information collected about you for the purposes of the study will be kept confidential.
The information that you give on the questionnaires will be held securely for five years in accordance with the Data Protection Act. A participant number will be used on all stored materials and your name will not appear on any of the questionnaires.
What are the possible disadvantages and risks of taking part?
Some people may find that thinking about their thoughts, feelings and experiences is upsetting. If this happens to you, there is a list of local and national support organisations included at the end of the questionnaires, that you can contact to discuss accessing further support.
We do not expect that any harm will come to you by taking part in this study. However, if you have any concerns or complaints, then you should contact the Research Director (Dr. Jane Simpson) on 01524 592970. When contacting the Research Director please provide details of the name of the study (so that it can be identified), the name of the researcher, and the details of the complaint you wish to make.
The research study has been approved by the Division of Health Research Ethics Committee at Lancaster University.
What are the possible benefits of taking part in the research?
There will be no direct benefit to you from participating in the research.
However, we hope that by carrying out this research we can learn more about the factors that affect people's psychological well being after being diagnosed with a low grade brain tumour. We hope that the research findings can guide the way that professionals support people who have been diagnosed with this type of tumour.
What will happen to the results of the research?
The research is being carried out as part of a Doctorate in Clinical Psychology course at Lancaster University. The study will be submitted as a piece of coursework. It will be read by the study supervisors and assessed by two examiners. It is hoped that the research findings will be published and presentations of the research will be given at relevant meetings or conferences. A summary of the findings will be available from the researcher on request and will also be posted on the Department of Clinical Psychology's website. No individual people will be identified in any written work or publications.
Questions and Queries?
If you have any questions or queries please contact us by telephone. If we are not immediately available please leave a message stating that you are calling about Melanie Booth's study and provide your contact details. We will return the call as soon as we can.
Melanie Booth (Trainee Clinical Psychologist) 01524 592970
What happens next?
If you are happy to take part in the study please click on the link below and you will be directed to complete a consent form and then the questionnaires:
Alternatively, you may wish to have the questionnaires posted out to you.
If you would prefer this option, please download the “consent form” and post it back to Melanie Booth at:
Melanie Booth (Trainee Clinical Psychologist)
Doctorate in Clinical Psychology Programme
Division of Health Research
Whewell Building
Lancaster University
Lancaster, LA1 4YF.
Or you can contact Melanie Booth, the researcher either by telephone (01524 592970) or by email (m.booth@lancaster.ac.uk), and she will post out a consent form to you. Please say that you are contacting her about her research and please provide your postal address.
Survey Links:
| News and Events | Staff | Publications | Links | Contact Us |
Site maintained by
Steve Wright and Sheryl Coultas