The IOELC is widely known for leading innovations in research that draws upon social science methodologies including qualitative methods, mixed methods, systematic reviews and other types of evidence synthesis, combined with research designs that are of value to practitioners and organisations in end of life care. The methodology theme cuts across the other main themes. Our research has contributed to the outcomes of the Cancer Experiences Collaborative (www.ceco.org.uk) where we have undertaken work in narrative analysis, (see our Observatory Publications page for more details), and we are also involved in a number of studies looking at particular methodological challenges in conducting research in palliative and end of life care. The Cancer Experiences Collaborative is also working with the MORECare team to develop guidance on how to conduct research in palliative and end of life care research.
Further details about current and recently completed work are available using the links on this page.
|Metaphor in End-of-Life Care|
|For more information contact: Professor Sheila Payne|
The study examines the metaphors used by patients, unpaid family carers and healthcare professionals in a 1.5-million-word data set consisting of interviews and contributions to online fora.
The study focuses on metaphors as these are often used in describing complex, emotional, subjective and taboo experiences – they can convey more, more vividly, but very concisely. Any systematic patterns can shed light on the nature of the experiences, attitudes, and needs of the members of each group and identify areas where increased anxiety or misunderstanding can occur.
|Applicants:||Elena Semino, Veronika Koller, Andrew Hardie and Zsofia Demjen (Linguistics and English Language), Paul Rayson (Computing and Communications) and Sheila Payne (International Observatory on End of Life Care)|
|Funded by:||ESRC (Economic and Social Research Council)|
|Project start date:||September 2012|
|Project end date:||February 2014|
|Developing research capacity in palliative care|
|For more information contact: Dr Nancy Preston|
This small study aims to develop research capacity in palliative care. There are a number of barriers to developing research in palliative care not least attitudes of staff and ethics committees towards including vulnerable patients at the end of their life in research.
We interviewed staff from a research active hospice about their experience of being involved in research. We are then going to present the findings of this study as well as other research pertinent to developing research capacity at three one day conferences in local hospices; St. Catherine's in Preston, Trinity in Blackpool and Eden Valley in Carlisle.
Power point slides from the conferences are available through the Resources box below.
|Applicants:||Dr Nancy Preston, Janet Rigby, Prof Sheila Payne, Dr Susan Salt, Anita Griggs and Alison Parr|
|Funded by:||Lancaster University|
|Project start date:||May 2012|
|Project end date:||May 2013|
|Resources:||Welcome - Nancy Preston
RDS - Nancy Preston
Research in the community - Maurice Nagington
Research Active Hospice - Mary Turner
Interview Findings - Jean Hennings
|Strategies to improve recruitment to research studies via healthcare professionals|
|For more information contact: Dr Nancy Preston|
Recruitment is a problem for all researchers with an estimated 50% of studies reaching their recruitment targets (Treweek 2010). These numbers are lower for palliative and end of life care research. Since the introduction of the data protection act in the UK researchers can only access participants through healthcare providers. Researchers are then reliant upon health care staff to identify suitable participants and ask them if they can be approached to meet the researcher.
The Cancer Experiences Collaboration (CECo) methodology theme decided to conduct a review to identify potential strategies to improve recruitment via healthcare professionals. The review is registered with the Cochrane Methodology Group and involves researchers from Lancaster University, University of Manchester, University of Cambridge, Loughborough University and the University of Cardiff.
|Funded by:||Age UK (through a Department of Health grant)|
|Project start date:||September 2009|
|Project end date:||July 2012|
|Resources:||Preston NJ, Farquhar MC, Walshe CE, Stevinson C, Ewing G, Calman LA, Burden S, Brown Wilson C, Hopkinson JB, Todd C. Strategies to increase participant recruitment to research studies by healthcare professionals (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: MR000036. DOI: 10.1002/14651858.MR000036.|
|Public involvement in research and the Cancer Experiences Collaborative: The work of the research partners|
|For more information contact: Dr Katherine Froggatt|
The role of users or patient and public involvement in research is increasingly being recommended in the UK. Users can have an impact on the design, conduct and analysis of research. We have worked with service representatives as research partners through the Cancer Experiences Collaborative and we are evaluating the impact of being involved in such work through a qualitative study. Interviews have been undertaken with eight participants and analysis of the data is underway.
|Applicants:||Froggatt K, Preston NJ, and Turner MJ|
|Funded by:||Cancer Experiences Collaborative (CECo)|
|Project start date:||December 2011|
|Project end date:||June 2013|
The Observatory continues to engage with a wide range of international projects, which can be viewed by clicking here.