IOELC Publications

An extensive list of recent publications, generated by staff, students and affiliated members of the International Observatory on End of Life Care can be found on this page. Please visit Archived publications for our other publications.

Recent Publications

Articles

Gamondi C, Pott M, Payne S. (2013) Families' experiences with patients who died after assisted suicide: a retrospective interview study in southern Switzerland. Annals of Oncology, published online before print February 27, doi:10.1093/annonc/mdt033.

Radbruch L, Payne S, de Lima L, Lohmann D. (2013) The Lisbon Challenge: Acknowledging Palliative Care as a Human Right. Journal of Palliative Medicine, published online before print January 31, doi:10.1089/jpm.2012.0394.

Payne S, Seymour J, et al. (2012). An evaluation of research capacity building from the Cancer Experiences Collaborative. BMJ Supportive & Palliative Care, 2(3): 280-285.

Barnes S, Gardiner C, Payne S, et al. (2012). Enhancing Patient-Professional Communication About End-of-Life Issues in Life-Limiting Conditions: A Critical Review of the Literature. Journal of Pain and Symptom Management, 44(6): 866-879.

Molassiotis, A., C. Farrell, Brearley S, et al. (2012). An Exploratory Study to Clarify the Cluster of Symptoms Predictive of Chemotherapy-Related Nausea Using Random Forest Modeling. Journal of Pain and Symptom Management, 44(5): 692-703.

Jünger S, Payne S, et al. (2012). Consensus Building in Palliative Care: A Europe-Wide Delphi Study on Common Understandings and Conceptual Differences. Journal of Pain and Symptom Management, 44(2): 192-205.

Payne S, Brearley S, et al. (2012). The perspectives of bereaved family carers on dying at home: the study protocol of 'unpacking the home: family carers' reflections on dying at home. BMC Palliative Care, 11(1): 23.

Payne, S., Leget, C., Peruselli, C., Radbruch, L. (2012) Quality indicators for palliative care: Debates and dilemmas. Palliative Medicine, 26(5). pp. 679-680.

Payne, S., Turner, M. (2012) Methods of building and improving the research capacity of hospices. European Journal of Palliative Care, 19 (1). pp. 34-37.

Hanratty, B., E. Lowson, et al. (2012). Breaking bad news sensitively: what is important to patients in their last year of life? BMJ Supportive & Palliative Care, 2(1). pp. 24-28.

Hanratty, B., Lowson, E., Holmes, L., Grande, G., Addington-Hall, J., Payne, S. and Seymour, J. (2012). Funding health and social services for older people: a qualitative study of the views of care recipients in the last year of life. Journal of the Royal Society of Medicine. Published online before print 25 April 2012, doi: 10.1258/jrsm.2012.110189

Reeve, J., Lynch, T., Lloyd-Williams, M., Payne, S. (2012). From personal challenge to technical fix: the risks of depersonalised care. Health and Social Care in the Community, Vol.20, No.2, p.145-154

Preston, N., Hurlow, A., Brine, J., Bennett, M. (2012). Blood transfusion for anaemia in patients with advanced cancer. Cochrane Database of Systematic Reviews. Issue 2. Art No.: CD009007.
DOI: 10.1002/14651858.CD009007.pub2

Books

Participatory Research in Palliative Care: Actions and reflections

Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.

This book was co-edited by Dr Katherine Froggatt.
ISBN: 9780199644155

Psychology for Nurses and the Caring Professions, Fourth Edition

This bestselling book enables those working in health and social care to learn and apply sound psychological principles in the delivery of excellent, evidence-based, patient-centred care. The emphasis throughout is on the promotion and maintenance of personal wellbeing and quality of life – for care professionals and those they care for.

The new, fouth edition features a more engaging and user-friendly format and has been comprehensively revised and updated to reflect the latest psychological knowledge. Psychological principles are also clearly set out and summarised in ways that are easy to read and understand.

The book was co-edited by Professor Sheila Payne.
ISBN: 9780335243914

Palliative and end of life care for children and young people: home, hospice, hospital

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues.

People interested in obtaining this book can do so through most good book sellers, including Amazon.
The ISBN is: 978-0470656143

Death, Dying and Social Difference

Professor Sheila Payne, second left, attends the official launch of the book at the Help the Hospices Conference in Bournemouth, September 2011

The second edition of an edited book 'Death, Dying and Social Difference' published by Oxford University Press was launched at a special symposium at the Help the Hospices conference in Bournemouth on Wednesday 28th September. The book is edited by Dame Barbara Monroe, who holds an honorary Chair at the International Observatory on End of Life Care and Professor Sheila Payne, Director of the International Observatory on End of Life Care and David Oliviere. Other members of the Faculty of Health and Medicine have contributed chapters including Professor Tony Gatrell, Professor Carol Thomas and Dr Mary Turner.